Worldwide Volunteers

The FOXG1 Research Foundation is the global organization dedicated to improving the lives of everyone affected by FOXG1 syndrome. Our incredible volunteer teams includes Parent Support members and regional Points of Contact who help families connect and navigate the journey.

Become a Volunteer

North America

  • A woman and young boy smiling and cuddling together, sitting on a brown leather couch.

    Alea Morren

    Parents Support Team ๐Ÿ‡บ๐Ÿ‡ธ

  • A woman with short, curly brown hair wearing a navy hoodie outdoors.

    Kate Lane

    Parents Support Team ๐Ÿ‡บ๐Ÿ‡ธ

  • A woman with long red hair and an off-shoulder leopard print top smiling with a young girl with light brown hair, blue eyes, and a wide open-mouthed smile.

    Amanda Nunnenkam

    Parents Support Team ๐Ÿ‡บ๐Ÿ‡ธ

  • A woman with shoulder-length brown hair, glasses, and a blue sweater smiling outdoors with trees in the background.

    Caroline Menzia

    Parents Support Team ๐Ÿ‡บ๐Ÿ‡ธ

  • Emily Sawyer Woods

    Parents Support Team ๐Ÿ‡บ๐Ÿ‡ธ

  • Close-up of a young woman with long dark hair, smiling, wearing a gray shirt and black blazer.

    Brianna Fleming

    Social Media Manager ๐Ÿ‡บ๐Ÿ‡ธ

  • A woman with long blonde hair smiling at the camera, wearing a black top and a gold necklace with pendants, against a plain light-colored background.

    Stevie Botti

    Events & Grants Team ๐Ÿ‡บ๐Ÿ‡ธ

  • A young woman with straight dark hair smiling at the camera, wearing a black top.

    Christina Grippi

    Grants Team ๐Ÿ‡บ๐Ÿ‡ธ

  • A young man with dark hair and a beard, smiling and wearing a dark blue blazer, white shirt, grey pants, sitting against a grey background.

    Vincent Grippi

    Communications ๐Ÿ‡บ๐Ÿ‡ธ

  • Portrait of a smiling woman with shoulder-length blonde hair, wearing a turquoise blouse and matching pearl necklace and earrings, against a soft green background.

    Pam Skillman

    FOXG1 Clinical Therapist ๐Ÿ‡บ๐Ÿ‡ธ

  • A young woman with blonde hair and blue eyes, wearing a red sleeveless top, smiling softly against a plain background.

    Kristen Hughes

    Caregiver Resources ๐Ÿ‡บ๐Ÿ‡ธ

  • A woman with shoulder-length brown hair smiling, wearing a black blazer and a statement necklace, in front of a white background with an orange border.

    Angie Van Wingerden

    Canadian Lead ๐Ÿ‡จ๐Ÿ‡ฆ

  • A woman with long brown hair smiling while sitting at a table in a modern kitchen.

    Raquel Moore

    United States ๐Ÿ‡บ๐Ÿ‡ธ

  • A young man with short brown hair wearing a light blue collared shirt, smiling at the camera.

    Ben VanGelder

    United States ๐Ÿ‡บ๐Ÿ‡ธ

  • Portrait of a woman with long brown hair, smiling, against a plain light-colored background.

    Anna Marie Goetz

    United States ๐Ÿ‡บ๐Ÿ‡ธ

  • Close-up of a smiling woman with long brown hair, wearing a light-colored sweater, with a white brick wall in the background.

    Rachel VanGelder

    United States ๐Ÿ‡บ๐Ÿ‡ธ

  • A smiling african american woman with short curly hair wearing a yellow and gray patterned blouse, against a black background.

    Peggy Kemei

    United States ๐Ÿ‡บ๐Ÿ‡ธ

  • A woman with shoulder-length dark brown curly hair, wearing a red headband, glasses, a sleeveless white lace top, and earrings, smiling and standing with her left hand on her hip against a plain light-colored wall.

    Marissa Jackson

    United States ๐Ÿ‡บ๐Ÿ‡ธ

Europe

  • A smiling woman with shoulder-length red hair, wearing a blue patterned top, standing indoors with a wooden door in the background.

    Rosi Garcรญa Aguilera

    Co-fundadora Asociaciรณn FOXG1 Espaรฑa ๐Ÿ‡ช๐Ÿ‡ธ

  • A woman smiling outdoors with buildings and a cloudy sky in the background, wearing a black jacket and a white shirt.

    Mรณnica Guijarro Santos

    Cofundadora Asociaciรณn FOXG1 Espaรฑa ๐Ÿ‡ช๐Ÿ‡ธ

  • A smiling woman with shoulder-length brown hair, wearing a gray top and a pendant necklace, outdoors with sunlight filtering through trees.

    Stรฉphanie Reynier

    Prรฉsidente Association FOXG1 France ๐Ÿ‡ซ๐Ÿ‡ท

  • Headshot of a young woman with blonde hair, blue eyes, wearing a gray blazer and a black top, smiling at the camera against a white background with an orange border.

    Charline Contal

    Association FOXG1 France ๐Ÿ‡ซ๐Ÿ‡ท

  • Christophe Le Nezet

    France ๐Ÿ‡ซ๐Ÿ‡ท

  • A professional man with short, dark, slicked-back hair wearing a dark suit, white shirt, and light blue tie, smiling at the camera.

    Nicolas Paolini

    France ๐Ÿ‡ซ๐Ÿ‡ท

  • A woman with light skin and blue eyes smiling at the camera, with light brown hair pulled back, wearing small earrings and a white top, standing against a plain background.

    Anouk Brunschwiler Eidam

    Switzerland ๐Ÿ‡จ๐Ÿ‡ญ

  • Close-up of a smiling woman with short blonde hair, wearing pearl earrings, a necklace, and a light-colored top, outdoors with green foliage in the background.

    Bonnie Snoek

    Netherlands ๐Ÿ‡ณ๐Ÿ‡ฑ

  • A woman with short brown hair standing outdoors, wearing a white and blue patterned top, with trees and a hill in the background.

    Judith Shepard

    England ๐Ÿด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟ

  • A woman with long blonde hair smiling at the camera, wearing a black and white checked top, with a blurred outdoor background.

    Christine Revkin

    Switzerland ๐Ÿ‡จ๐Ÿ‡ญ

  • Close-up of a young woman with long wavy brown hair and blue eyes, smiling softly in a black top.

    Patrycja Zawadzka

    Poland ๐Ÿ‡ต๐Ÿ‡ฑ

  • A woman with long reddish-brown hair smiling at the camera, with a bright background and sunlight flare.

    Ulrika N-G

    Sweden ๐Ÿ‡ธ๐Ÿ‡ช

  • A woman with short blonde hair, wearing blue glasses, a green blouse, and a black blazer, standing in front of a yellow and white background.

    Lili Molnรกr-Portรถrล‘

    Hungary ๐Ÿ‡ญ๐Ÿ‡บ

South America

  • A woman with light brown, wavy hair smiling in front of a research organization's banner.

    Leticia Piccoli

    Brazil ๐Ÿ‡ง๐Ÿ‡ท

  • Chile

    Magdalena Labbe

    Parent Lead - Spanish-speaking countries
    Chile ๐Ÿ‡จ๐Ÿ‡ฑ

Asia Pacific & Oceania

  • A woman with glasses and a headband smiling next to a young girl with dark hair and a striped shirt, both taking a selfie indoors.

    June Huang

    Taiwan ๐Ÿ‡น๐Ÿ‡ผ

  • A man standing outdoors near a large body of water with hills in the background, wearing a dark polo shirt.

    Steve Hille

    FOXG1 Research Foundation Australia ๐Ÿ‡ฆ๐Ÿ‡บ

View our Executive Team
View our Scientific Advisory Board, and R&D Counsel
View our Business Advisory & Philanthropy Board